I knew so much more having my last two babies than I did the first time. I have had two ICP pregnancies. Give the Gift of Support for Intrahepatic Cholestasis of Pregnancy! She was already scrubbed up, took her seat at my feet and instructed me how best to push with the contractions. Additional research is necessary in this area since some pregnancies appear to be at higher risk than other pregnancies with Intrahepatic Cholestasis of Pregnancy. My doctor sent me right to another hospital with a NICU when he saw my most recent blood tests. The itching had stopped immediately after birth with no further incidence. The conclusion? That’s how Intrahepatic Cholestasis of Pregnancy (ICP) felt for me the first time. (We were set to be induced because of my previous loss and not knowing why she had passed so abruptly.). Please trust me when I say I’ve seen the stories about ICP and it is what I had, no questions about it. For the next few weeks, it spiked back up to a 17 at his 2 week appointment, then dropped down to a 16 and 15 at consecutive weekly appointments. Going anywhere was torture, having to put on “real” clothes. I was thankful to have such a thorough OB who knew just what to do, as well as the resources of ItchyMoms! Watching the show, so much made sense. From then onward, he was there with a cool rag and shoulder massage to help me out. I declined the hospital gown, as they were starchy and hot, and opted to wear a sports bra and maternity tank and wrap a sheet around my waist. I was super nervous. They started the 3rd bag of Ampicillin at 9am – just as my grandmother arrived. Although the etiology is still being researched, it is known that hormones, genetics and the environment all play a part in why a woman develops ICP. Oh ok, my mom says, keep me posted! I stopped worrying about it all, until I noticed that I had lost my mucus plug at 35 weeks + 2 days. Everything was perfect. Hearing those words broke my heart right there, it really did. Research has shown that a bile acid blood level over 40 micromol/L during pregnancy appears to be associated with an increased risk of complication to the unborn baby. Have you ever thought you were going crazy because of something your body is doing that no one else understands? I checked into Triage at about 6:30PM, only to be told I should have gone to L&D, who told me I belonged at Ante-Partum. Intrahepatic Cholestasis of Pregnancy (ICP) is a condition in which the normal flow of bile is affected by the increased amounts of pregnancy hormones. The incidence of ICP also shows a striking geographical pattern, with a higher prevalence in Scandinavia and South America specifically Chile where the reported prevalence is as high as 15.6%. With active management that include the two most important factors in the treatment are: reducing the bile acids in the bloodstream with the medicine Ursodeoxycholic Acid (Actigall) and delivering the mother as early as lung maturity will allow, often by 36-37 weeks gestation. I said, because this time, I know what to do. The contractions were getting much closer together – about 2 minutes apart, and I really had to concentrate through them, as they lasted nearly a minute each. Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity! My OB didn’t seem concerned, as it is only indicative of the cervix ripening – not necessarily labor being close. Other symptoms of ICP include dark urine, pale pool and jaundice - yellowing of the skin and whites of the eyes. They were still elevated upon discharge, but were down to normal at my 2-week check-up. I, of course, called my mother to tell her the good news. It wasn’t a debilitating itch, but it was definitely noticeable and very irritating at night as I tried to wind down to go to sleep. There are more women diagnosed with Intrahepatic Cholestasis of Pregnancy (ICP) during the winter months. I wanted to make sure that my blood pressure stayed under control, so I didn’t want to stew over this for very long – I needed the peace of mind. I had a 1st degree tear, which the OB put in two stitches, only because it had torn a blood vessel and she wanted to control the bleeding. I had gotten out of bed to use the potty. I read more about cholestasis of pregnancy online and printed out some information to discuss with my husband because the statistics on the article I read noted a small percentage of loss of the baby due to ICP. I had labs redrawn every week to check on the liver/bile levels. I was 38 weeks pregnant. ICP is associated with higher rates of intrauterine fetal demise (IUFD) also known as stillbirth. In the past, my doctor had even agreed to allow me to go to 42 weeks if I was healthy. I’d eventually fall asleep in the late morning, passing out from exhaustion. I had probably felt her moving because her body just moved when I did and shifted on its own. My husband took a nap on the sofa, and we had a shift-change with the nurses. We’re there!” The risk is greatest after a woman is 37 weeks pregnant, Dr. Cackovic says. The figure for the percentage of women for whom Intrahepatic Cholestasis of Pregnancy will recur in future pregnancies is 60% or as high as 90% for severe ICP. It was a mess…no one knows the disease! Every piece of hair that wasn’t attached to the top of my head drove me insane. I had always wanted a lot of kids, but at this point I’m getting to that “advanced maternal age” doctors tell you about. The only comfortable piece of clothing was my husband’s bathrobe, turned inside out (the outside was softer, why is that?). She asked me a few questions and told me to head in to L&D. But what really got me was the doctor on the show saying, “you must induce before 38 weeks or the baby has a high chance of mortality”. (To find the english name and more information about your disease. Itching commonly occurs on the palms of the hands and soles of the feet, but it also can spread to the trunk of the body. By the next Monday I had definite elevated bile acids levels and was being induced, at 36+3. Intraheptic Cholestasis of Pregnancy (ICP) At around 35 weeks pregnant I read about a condition known as Obstetric Cholestasis (OC) or now more commonly known as Intrahepatic Cholestasis of Pregnancy (ICP). I was lucky enough to bring 2 beautiful girls into this world after having ICP with them. ICP is a serious liver disorder which is caused by a build-up of acid within the body. To sign up to the latest Rare Disease Day news! People asked me why I still got pregnant knowing I was basically “allergic” to being pregnant. She wasn’t my doctor (since mine was out of town), but she was one of the OB’s in the practice that I was familiar with. She said that normally they would let you labor at home, but since I was high-risk and premature, she wanted me monitored to make sure the baby wasn’t in distress (which can apparently be a cause of premature rupture of membranes). All the sudden, I saw myself on the screen. Intrahepatic Cholestasis of Pregnancy (ICP) is a liver disorder which occurs during pregnancy. ICP poses several risks that are of great concern. This may lead to Vitamin K deficiency. I became depressed quite quickly. Helen George, 36, suffered ICP during the late stage of her pregnancy, when she was pregnant with daughter Wren Ivy. The main symptom is itching without a rash. Fast forward about 5 years. I had her about 8 hours later, born into heaven. ICP is rare — in the US it affects between 1-2 in 1,000 pregnancies. What was funny about it was that there was no rash or skin discoloration of any kind – so I was baffled. It is uncommon, affecting 1 in 140 pregnant women (0.7%). I’ll never forget her having this premonition and asking me “is the baby moving?” I said “well, yea, I think so…” I remember feeling like she’s very big though she’s not got a lot of room to move, but I move and she moves with me and rolls around. So, I got up at 6 the next morning, went in for my labs, before heading to work. I still felt a little leery of the information, but went on with my day. Intrahepatic cholestasis of pregnancy (ICP), also known as obstetric cholestasis (OC), is the most common liver condition specific to pregnancy. You can write about your story and also submit photos or a video testimonial. Again, I was told this is normal. Our pregnancy blogs and stories cover real life pregnancy experiences about planning a pregnancy. She believed me! By 12:30 I was seriously considering an epidural – which is crazy, since I am staunchly against using pain-medication of any kind – and my mom and doula had to talk me down. That’s not how it ended for me. Cholestasis can cause a baby to be stillborn, as well as cause pre-term birth and fetal distress, Dr. Greves says. Cholestasis of pregnancy causes intense itching, primarily on the palms and soles of the feet, though the itching can spread to other parts of the body. Intrahepatic cholestasis of pregnancy (ICP), also known as obstetric cholestasis (OC), is a liver disorder that can develop during pregnancy. The nurses asked if I wanted another check, but I said “not until I feel pressure”. Enjoy our extensive library of all types of birth stories organized by category. At this point I have told my OB my suspicions about my first pregnancy being ICP from having done some research. Pregnancies are not the easiest of times for women. It helps your body digest (break down and use) food, store energy and remove poisons. My story of Pregnancy Loss with Intrahepatic Cholestasis of Pregnancy, and my Rainbow Baby, Mi Experiencia de embarazo ICP – My ICP Pregnancy Experience. I’ll call you 9.75cm. She couldn’t sleep, she was exhausted. This condition affects the normal flow of bile. This time, I will bring a baby home with me. It affects the normal flow of bile, which results in itching that can vary in severity and type. I was prescribed 300mg Actigall, which I began taking every 8 hours with food – to control the bile acids. He weighed 10lb 10oz at his appointment at the end of October, & 13lb 2oz at his December appointment so he’s gaining weight like a champ. ICP, which stands for intrahepatic cholestasis, is a … I refused to “pump and dump” for 24 hours to drop them rapidly, since the pediatrician said they would slowly come down on their own – calling it “breast milk jaundice”. My doula arrived about that time, and was geared-up and ready to assist. (We were in Alaska, mom was in Michigan). It was all meconium. We got the levels down to an 11 on Monday and were finally able to go back home. The weeks past and at 31 weeks on July 4, 2015, I woke up and he wasn’t moving anymore. We decided to start trying for a baby. Everything was moving along without further incident – baby was measuring well, amniotic fluid levels were good, and he was handling the NST’s like a champ. These are the ways in which bile acids may harm the baby based on research. I also talk about my ICP pregnancy stories and treatment protocol with all 3 pregnancies. Emily Rhea. The condition means there is a higher risk of stillbirth and a potentially dangerous childbirth. Intrahepatic cholestasis (ICP, also known as obstetric cholestasis) is a condition of pregnancy that commonly manifests as itching and in rare cases jaundice. All I could manage to say was, “Pressure!” and my body began to bear down on its own, causing me to grunt and pant against it. My grandmother was on the road. I read all the books. TTC, Hospital Induction Laboring with & without Epidural. Intrahepatic cholestasis of pregnancy, commonly known as cholestasis of pregnancy, is a liver condition that occurs in late pregnancy. From then onward, I had weekly ultrasounds (biophysical profiles), as well as non-stress tests twice weekly. Cholestasis of pregnancy is a liver condition that most commonly arises in the third trimester, but can happen as early as 8 weeks. In the third trimester, I started itching. These include abnormal heart rhythms, abnormal contraction of the veins supplying the baby with nutrients, greater sensitivity of the baby's intestines to bile acids that may cause passage of meconium, intensified susceptibility of the uterus to hormones which may trigger labor and premature aging of the placenta due to exposure to elevated bile acids. My husband was obviously losing his grip a little and my doula had to give him a ‘pep talk’ of sorts to get him back in the game. The official cause of death was asphyxia. Listening to birth stories is one of the best ways to prepare for birth. At Baby hints and Tips have stories to share that may help. And it wasn’t. I was exhausted, but that was a motivator. Her water has obviously broken. He was so quiet when he came out, but his eyes were open and he was alert. My doula said that this was likely transition, and that we were probably getting very close now. Even on URSO, my levels kept rising. Although the reason for this is not clear, it suggests that there is an environmental trigger for the condition, such as a reduced exposure to sunlight or a change in diet. We became pregnant in Dec 2014, and it was the best day ever finding out I was having my rainbow baby girl! I started itching on a Sunday. I was like, “Yeah right...I don’t think the baby is paying attention,” and continued as I felt the urges. We were discharged on Friday with a bilirubin of 8.5, but were back in the NICU by Saturday afternoon with a bilirubin level of 21. Order blood tests to check how well your liver is working and measure the level of bile salts in your blood They hung a bag of Pitocin to control the bleeding and help deliver the placenta, since ICP moms are at a far higher risk for post-partum hemorrhage. To be told everything I had gone through was going to be worth it to hold my baby in the end. And the ‘ ring of fire ’ most moms speak of under the sun to... 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